Monday, July 20, 2009

Home Sweet Home - Finally

Well we made it home last Sunday. We have been home for a little over a week. But not before some Compton mayhem. Sunday the 12th was Hannahs birthday, we were released that day. She was so happy! We drove about an hour and stopped for a bathroom break. Hannah walked in and walked back to the truck and passed out in the parking lot of a Mcdonalds. We had no idea where we were. I called Duke, they said to call an ambulance. We did. The closest hosptial happened to be Winston Salem Baptist Hospital. I thank God for having his hand in EVERYTHING! It could have just as easily happened another hour or so down the road near a tiny unknown hospital. About 4 hours later we were cleared to leave. She had just fainted from the heat and anemia. Which we knew about. She is on iron for 2 months. This I told her was her present - tour de hospitals
As the rest of my life goes we just got home and Hunter started an episode. I looked up to heaven and just said "Really?" - okay God. As long as you are with me, just please let me sleep some. The episode lasted through yesterday. Hunter has actually slept through the night a couple of times this week. Hannah has done well and had her stitches taken out today. UGHHHH! She has had so much lately the anxiety was overwhelming. She cried and screamed in the office, before and during, which made them very hard to take out. There were two. Everytime the doctor had it she would wail and he would lose the stitch. ughh.
So everything has some sort of benefit!
1. Hannahs heart was completely fixed- for good. The doctor was able to repair it using only her tissue, no rings, valves- nothing- and it was worse and more deformed than they thought. God really showed off big! We were expecting a ring, which would have to be replaced and eventually a valve replacement, but God is the Great Physican and heals!!! No more surgeries!!!
2. The food- Many different people from church and my small group have brought food the last 2 weeks. WOW, can our church cook! It started off with some amazing pork tenderloin, melt in your mouth mac and cheese and hasn't stopped. We have just finished a delicious chocolate cake with whipped cream that is 2 die 4. Thanks to all of you that brought the yummy food. I haven't had to cook yet and don't have to the rest of the week!!!!! YAY!

Well I am tired and going to put the kids in bed. Another dr. appointment tomorrow. Hunter this time- ingrown toe nails removed (both feet). Captivating Huh?

Thursday, July 9, 2009

Matters of the Heart

What an exhausting 2 days. Hannah is doing okay. Her surgery was a success. The doctor was able to repair both flaps of the valve with only her tissue. There was more damage than we thought. Both of the flaps of the valve were damaged. One had grown into the patch they placed when she was an infant and was stuck open. The other one had a cleft in it allowing blood to flow through almost always. We are amazed that God not only answered our prayers but went above and beyond so Hannah didn't have even the valve ring put in. We weren't expecting this at all, honestly didn't even know it was a possibility. We praise you always God. You are mighty and merciful.

I'd like you to continue to pray because she is running a slight temperature and she hasn't eaten yet. She has thrown up all of the liquid she has tried to take including the Tylenol. We are having a hard time controlling her pain as well. She took a little walk to the elevators came back and slept for 3 hours, woke up, went potty and went directly back to sleep. She wakes up because she is hurting.

As the title of the blog suggests things are never easy around our household! Hunter is sick and hasn't eaten in 2 days. He threw up the night before Hannah's surgery. He has played some but not his fullest. He also can't be on the floor where Hannah is and so keeping him occupied is becoming more difficult.

My heart aches for all of these babies and children who have been here all day and have had no visitors or parents here. Several of them are under 2 years old. My nurses have to throw me out, I can't imagine not being here all day.

I got about an hour and a half to play with Hunter today. We found a little play area (not much) as I was telling him bye he said no momma. I told him I had to go help Hannah, he said no momma, no Hannie. His eyes were wide and he tried to get me to sit back down. I missed him so much, I know he missed me. There have been very few nights I have not put him to sleep, it so hard to be torn. Hannah says please don't leave me. Ughh!!!

So many matters of the heart!!