Tuesday, June 30, 2009

Seasons- (of my life -all of them at once)

WINTER

As I have said, the rarest most bizarre things happen to us. Our hearts are heavy with the news we received today.One of the most difficult, rare heart surgeries will be preformed on Hannah on July 8th. I am not sure what God has in store for my beautiful daughter but I must remember she is also his beautiful daughter and he too loves her. As hard as it is to fathom he loves her more. I do know he has something in store for us, which honestly is scary for me. I know he is God and knows whats best but I am growing tired of the unusual, rare events that seem to plague our household. I know often he is teaching me I need to lean on him and not myself. I wish I could be more righteous and worthy but I would rather my child no go through this for any reason. Maybe another day I will feel differently.



For those of you who don't know- my son has one of the rarest disorders in the world. It is Alternating Hemiplegia. Basically, he has paralysis that alternates sides of his body. It lasts about 10 days each time, typically affecting the right side for 3-4 days, his entire body for 2-3 days and then the left side for 3-4 days. It cycles around every 25-30 days. He is 3 years old.



SPRING
Hunter is doing good right now, and his language seems to be exploding. His favorite word is tootee,-which is cookie. He is being so precious. Last week a new doctor said if I didn't know what he had I would think he was very healthy. He looks great! Whoo Hoo.




SUMMER

I couldn't leave this out cause its just too hot!!! I have the best husband in the world. He is a great dad too. I couldn't do it with out him!! We were at the Asheboro Zoo and just couldn't resist this picture!! He makes me laugh all the time. He makes life fun.



FALL

Well all that's left is Fall and I guess that's how I feel. I feel the chilly breeze coming while still feeling the warm sun shinning on my face. I am so thankful for that warm sun feeling. With all that said I do have a Peace that God has given, don't get me wrong my stomach is in knots and tears have melted down my face several times today. But I cling to God's promises to me. in particularly he promised while I was pregnant with Hannah Psalms 113:9 God maketh a barren woman to keep house and have many JOYFUL children. I know that seasons change. I also know God's Joy and he and his joy never leaves!!!

Renee

Wednesday, June 24, 2009

Hurry Up and Wait

We've been waiting for yesterday for a while now, waiting with trepidation. We spent a total of six hours in 2 doctor offices. With Hunter they started a new vitamin- insurance actually pays for this one!!!! With Hannah we were supposed to find out if surgery was needed now or we can wait another year. We still haven't found out. Our Doctor is conservative, which I appreciate immensely. Hannah did a treadmill test and did OK- not great- not the worst so just okay. However it did not confirm either way for him, so he wants to review all the findings with several other doctors reread the MRI, echo, and contact the surgeon again and have him re look at all the info. He said they would decide and let us know the beginning of next week. As a precaution the in order to get us in in a timely manner the surgery has been scheduled for July 8th. We scheduled it about 3 weeks ago, just in case so she would have time to heal before going back to school. So if you get a minute of two in your day, send a pray up for my darling Hannah.
Hunter has come out of his episode, he is a little weak on the left side still, but pretty much he's back!!!
We leave for Camp Caraway to pick Darren up from camp. We will get to see and stay with Ashley and Mark. On Saturday morning we are going to the Asheboro ZOO. We are all excited!!!

Renee

Sunday, June 21, 2009

Long Days

Its been long days here at the Compton Compound. Hunter is in an episode. Hannah now knows her surgery is scheduled. We had a great fathers day weekend mostly staying at home and watching movies together. We've played in our little pool and had a blast. Hunter has added a few new words like Ashley, cold, and pool as well as saying "no way da da" when Noah splashes.
Long days but pretty good as far as snuggling up together making memories.